Tag Archives: life

Diary: Diagnoses (Plural)

After diagnosing me with a severe form of PTSD, the therapist told me that it would never go away. The symptoms, however, could be managed. Formally, I have paperwork from a psychologist that says I have Autism Spectrum Disorder and Major Depressive Disorder. It did occur to me to see another psychologist to formalize my PTSD diagnosis, and get paperwork that officially says I have Post Traumatic Stress Disorder. And, depending on the psychologist, they might add another diagnosis as a comorbidity because, while Complex Post Traumatic Stress Disorder is recognized internationally by the World Health Organization, the disorder is not recognized as a distinct diagnosis in the United States by the American Psychiatric Association. In any case, I have PTSD, whatever the flavor is.

And PTSD is something I often minimize, which is why I’ve thought of formalizing the diagnosis. After giving a therapist my “Trauma Timeline,” which is a spreadsheet of every traumatic thing I experienced and the age of the event, I asked them if they were sure if the diagnosis was right, that I had PTSD. And that was one of the few times in my life where someone looking at me with shock as if I were Earth’s biggest moron was validating—I was validated. I still minimize sometimes, but not as much as I used to. I’ve accepted it—accepted these diagnoses in some form or another.

The nightmares aren’t as bad as they used to be, though I’m still afraid to close my eyes some nights. The hypervigilance isn’t as bad, either, in that I feel like I can sit still and be ok with it; I don’t have to go on these marathon walks or exercise sessions to exhaust my body so my brain will feel relief. The intrusive thoughts are there, though, but they don’t sting as much. And there are lots of thoughts—lots of intrusive thoughts I unfortunately still draw upon over the years. I don’t reexperience them like I used to. They’re more in the distance. I’m not sure how much of that distance is due to dissociation and how much is therapeutic processing, though.

I’m at the point with it all, though, where I’m left wondering “why?” And I mean this as if to ask various people who inflicted the trauma upon me what was going on with them. I’d never do it, though. I never want to interact with these people again. Some, I even hope are in a better place, or happy, or that life has become good to them. But I still wonder “why?” even though it is extremely absurd, given how disproportionate it all has become. It’s so disproportionate that it’s almost a contradiction. And I mean it is disproportionate through the following idealized example:

EXT. CITY – DAY

CAMERA looks down at the sidewalk filled with people going to work. There is a lone man with a multi-colored backpack and a bicycle exiting a building.

ANGLE. BEHIND THE MAN ON THE BICYCLE

LOUIS rides through the sea of people to get to the TRAIN STATION

FRONT ANGLE. CU. LOUIS’s FACE.

EXT. TRANSTATION – DAY

LOUIS is on the TRAIN PLATFORM. He looks down at something, then squints and lifts it into view. It is his PHONE. He’s fiddling with the screen as a TRAIN arrives on the platform behind him.

People unload from the train and wait on the crowded platform.

LOUIS pulls his bicycle close to make room, only to accidentally bump into someone who drops their documents on the crowded platform.

                                                              LOUIS

                                                    Oh my god! I’m so sorry. Let me help you.

The PERSON looks up. It’s someone LOUIS hasn’t seen in years.

                                                              LOUIS

                                                    Uh… Well, this is weird.

LOUIS doesn’t move.

                                                              PERSON

                                                     Wow. How are you? It’s been so long. What

                                                     are you doing these days?

LOUIS

Fine… and I’m doing stuff. (A BEAT) So, weird

question. Like, at the end of our relationship,

when you used to hit me a lot, and strangle me,

and smother me in my sleep, and call me names,

and when you ran at me with a knife, what was

up with all that? Like, I remember you telling me

you wouldn’t hit me if I just did what you said,

but the knife thing. Were you just trying to scare

me? Because I have this weird thing with minimizing

my experiences to make them easy to process.

But, one of my friends who’s a combat vet was

like, ‘Louis. You don’t do that to someone unless

you’re trying to kill them.’ So, like, was that what

was going on? Like how much pre-meditation

was there in this. Was it like, if I died, then you’d

be like ‘oopsie daisy’ or something?

HOLD on LOUIS’s face and his plain look. He is without anger or pain.

FADE OUT on his face.  HOLD IN BLACK.

                                                                                          THE END.

 

So yeah. That’s about how I imagine it going. In reality, though, I’d probably have a panic attack and ride off like hell, and hide in a dark closet. Then I’d probably eat a pint of ice cream and need a hug from my wife. But the disproportionality of the experience with where I am at an emotional level with these traumas is surreal. This script describes me as having survived high lethality abuse. And this script serves as a blueprint for there are a lot of people I’d like to ask a question of. And I’d film it as a montage with me in all sorts of locations. You’d only see my face and me asking the following:

“So like, you know that’s dysfunctional?”

“I was a one-off, right. You don’t do that to others?”

“Did it occur to you that my living in a meth-lab was dangerous for my health?”

And I could go on with the questions as they get increasingly disturbing. But despite all this, and the diagnoses, I’m writing poetry despite what the Secretary of Health says about people with Autism. I’ve done a lot with my life. And my wife and my therapist say I’ve put in a lot of work and done a lot to work on myself. Personally, I think I’m just lucky. But saying I’m lucky might be just another form of minimizing. I need to stop doing that.

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Diary: Eulogy

One of my friends died last year. She was older and lived about to the average lifespan for a woman in the U.S.

She’s often in my thoughts. And I sometimes go through old text messages to see the exchange of ideas between us. To say I miss her would be an understatement, but these memories and desires serve as a reminder to “not waste it,” as they say. But what exactly is being wasted?

She told me she wanted to write one more book. Even so, as she told me this, she knew she was dying. Her kidney function was diminished, which affects heart function. And the sequelae of these infirmities affect not only the cardiovascular system as a whole but also the liver. Despite these, she was still sharp, even in her last days. But in her last days, I could see her waning energy.

I still have one of her books she wrote about 35 years ago in the nightstand next to my bed. It’s a good book. And sometimes I put her name in a search engine and see some conversation on Reddit where someone somewhere discovers her writing for the first time.

Near the end of her life, she was concerned about a few things. Leaving a legacy was one of them. Another was the fear of the unknown in the unavoidability of death that was looming closer. And in her last year, she would text me about her angina attacks to let me know that ‘this might be it.’ Foolishly, I asked if there was anything to be done, and in her own way, she said what she said, which ultimately meant, “no, dummy. I’m dying.” I miss her intellectual generosity as well as her ferocity. And we’d text back and forth and the severity of her ailments would ease up enough for me to visit her. Eventually, however, it was a text from her daughter a few days before Thanksgiving, letting me know that her mother — my friend — was gone.

In her last year, she gave away her books. The only reason an author does that is to prepare an exit from this world as if to sit in their own grave and bury themselves, taking on the trouble themselves so no one else would feel the burden. And I read some of the books I got, and in one of them looked to be a love letter — not to me. It was a rough draft. I always knew she could write — of course she could write, she had about 12 books with Signet, an imprint of Penguin Random House. But my god! I didn’t know she could write like that. And even as I think this, I feel like I see her in my mind’s eye and hear her, saying with a look of amusement, slight annoyance, and bewilderment: “Of course I can write like that!”

One thing I remember her telling me, which amounts to a human axiom, is this: if someone else can’t do it for themselves, you should do it for them. This wasn’t meant as a way to help someone evade responsibility for life or anything. Rather, in her case, if someone couldn’t imagine something better in a terrible world, then it was up to you to offer up your imagination for them. This axiom, I think, was what motivated her writing.

And so I think about these lessons from my friend and how that resonates with my life and my being. Ultimately, I want to be left alone. I want to be no one. I want quiet. And these aspects of desire have followed me for a long time, as evidenced by my actions in throwing away school pictures and keepsakes from my youth. There’s only a handful of pictures that I can think of, and I didn’t have access to them despite throwing away what I could. I suppose, in a way, my throwing things away is akin to burying myself. But it seems that with my friend’s lessons, I am to unbury myself, which is to say that I am to more fully engage with this world and other people. And if that is the case, then what am I to imagine? What is this sense of obligation that I feel?

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Diary: My Namesake

How fitting that I should carry the namesake of a man that forked himself in to the family tree three generations ago, as if to share a first name was to finalize what I would otherwise inherit and continue on with a surname. A conciliatory legacy, I suppose, of things that will live on after death in a way that mattered in life. It mattered to him, I think, even if it was only a first name.

I was little when I would follow him to the shed that housed his idle 1966 T-Bird Convertible. He’d crank the engine and have it run for a good ten minutes to keep the vehicle in working order even though he never drove it. I’d sit in the driver’s seat and he’d role play this aloof pedestrian that I’d honk at and startle. He got a kick out of that as much I did at that age.

Another time, I was playing on the stairs with some transformer knock-off toy when he approached with wobbly sea legs and a wide rimmed glass in hand. He put the other hand on the banister to sturdy himself, and he stared at me as if before an audience and about to give an address. He told me he loved me, and then he hugged me. I remember the brisk whiskers on his cheek and the smell — God, that smell, and I told him so with the bluntness of a child. The rebuff stirred a long silence, and all he could do was slink away.

I didn’t get the meaning of the moment until some years later when I had that same wide rimmed glass filled with ice cold gin while looking at a bottle of vermouth, and then a splash of vermouth, and so on until ratios seemed right for the moment. Not 1 part this to 4 parts that, but instead .08 and higher so as to thin the blood and help the heart not to work so hard to beat out ‘I love you.’

I got it. I think I got it. And how things have changed that I can be stone sober and say, “I love you, too.”

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Happiness

I’m happy.

Life has arranged itself into what I want it to be; and I feel like I manipulated a good chunk of my life in the right ways these past few years. I must admit, however, I didn’t know I would be here… where ever here is.

I think about death a lot, too. I feel like death is this gift I keep in my pocket to keep my perspective aligned because there is this world outside of myself that pulls on perspective. I’m fortunate that I don’t have to be punctual at work (as long as I get my work done), because it allows me time to bond with my partner… those extra minutes are important. Why should I have to wait to say what I want to say before seeing her again?

I don’t have a lot: I would rather have less than more, and I would rather be homeless and working odd jobs than find myself tethered to the acquizition of things, or be in a position where I could acquire a bunch of things. The thought of homelessness scares the shift out of me, but it also has an appeal… I could be the quintisential dirtbag like Fred Beckey, except it would be in my craft.

And can’t help but think of the misguided dreams fostered by people that have “made-it” as they’re talking to a crowd dreaming of fame and wealth. I think the true success stories are of those that are doing what they want to do. If the fame and wealth overlaps, then that is fine, but I think fame and wealth as a goal is a miserable goal.

I have a happy little life. And though I sit on my chair and think and write, I feel like I have come to understand the language of the birds anyway…

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The Quiet Away From People

I deleted my facebook account some time ago. Consequently, I went to other social media sites to stay “connected” through information. The funny thing is that those other social media sites are starting to seem just as inane when you see personas instead of people. You can’t connect with a persona in any other way than something schizophrenic, which is the most insincere form of connection. Knowing the self is hard enough when you are alone. Then, when you enter into a dynamic with other poeple, your self is changed, and that self is further changed when someone turns the screw of their personality and makes it a persona. Eventually, the lies told are believed by the liar, and then by everyone else.

I like being alone. I think being alone cuts down on the extraneous mental noise from other people. If everyone is, in a sense, a brand, then I have turned down the advertisements. I sometimes think the advertisements that inundate our lives are just as toxic as the air on a smoggy day; and, like the air, the smog obfuscates my ability to see clearly. I suppose the question arises how the information in the world influences us and how it is used to hide stuff from us while exposing us to something “preferred.” Furthermore, isn’t an advertisement just repeated information aimed at drilling itself into your psyche to get us to act in a certain way? I surmise people aren’t that different from a billboard you pass on the street in how they affect you in the long run. We are nuggets of information after all.

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